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It's OUR day
Use this day to:
- Educate others about Lupus
- Make as many people as possible AWARE
- Tell everyone you meet about The Lupus Support Network
- Send e-mails to your contacts to let them know about Lupus
- Use Facebook, Twitter, LinkedIn, and all the social media you can to
bring more Awareness to Lupus
- Encourage funding for research
- Distribute literature about lupus and about The Lupus Support
Network
- Wear your Orange Lupus Awareness Ribbon
- Do your part to bring Awareness to lupus
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If you would like more information regarding lupus or
The Lupus Support Network contact our office at
850.478.8107 or 800.458.8211
or via e-mail at
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e-mail the Lupus Support Network
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From The Lupus Research
Institute
Online Tips & Toolkit for
Spreading Awareness:
Connect at: Facebook.com/LupusRearch and Twitter.
com/LupusResearch
Activate your avatar: Change your profile icon to one of
these lupus awareness images. It’s an easy way to tell
your friends on Facebook, Twitter, MSN, Google Talk,
Yahoo, and AIM about the fight for life without lupus. (To
download: select your favorite icon, then right-click and
choose “Save Image as...”)
Avatars for Facebook, Twitter, MySpace
Share your message of hope for a cure at Share Your
Story Here. Submit a story, photo, video, or song that
communicates how you’ve been impacted by lupus and
why it’s so important that we support research towards
a cure.
Tell your story: Use your Facebook status or YouTube
account to tell your lupus story. How does lupus impact
your everyday life, your family members, or friends?
What do you wish for the future? Encourage friends to
join our fight at Join The Fight
Educate your friends: Tweet (or post to Facebook) a
new lupus fact each day in May. Use the information at
Educate Others to inform your updates. Or feature an
LRI researcher each day!
Help us all win the fight.
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* Join a
clinical trial.
Learn more at
Clinical Trials.
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* Create your
own public
service
announcement
. Upload it to
YouTube and
post it to Your
Own Public
Service
Announcement
.
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* Record a video
to help physicians
better understand
lupus. The Lupus
Initiative wants to
know: If you could
tell health care
providers
something
important about
lupus what would
you say? Share it
here.
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* Spread awareness—give out lupus
awareness bracelets. Order your
bracelets from The Lupus Support
Network today.
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* Run for a cure! Team Life Without Lupus is
recruiting members for its 2011 ING New York
City Marathon team this November. Learn more
here.
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Could you have lupus?
Do you know the signs and symptoms
of lupus?
Do you know what questions to ask
your physician?
If you think you may have lupus, want to
know the signs and symptoms, or want to
know what to ask you physician visit:
Office of Women's Health Website for Lupus
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Benlysta
The first drug approved by the FDA for the treatment of lupus in
over 50 years.
Since this announcement about the approval of Benlysta we have
been innundated with a lot of questions and concerns about the
drug.
To help everyone understand about the drug, to determine if they
are a candidate for this new drug, and answer general questions
we are posting the following information that came from the
www.drugs.com website.
Benlysta is used for:
Treating certain patients with systemic lupus
erythematosus (SLE). It may also be used for
other conditions as determined by your doctor.
Benlysta is a B-lymphocyte stimulator
(BLyS)-specific inhibitor. Patients with lupus often
have high levels of a certain protein in their blood.
Benlysta works by limiting the activity of that
protein.
Do NOT use Benlysta if:
* you are allergic to any ingredient in Benlysta
* you have severe, active central nervous system
lupus
* you have certain severe kidney problems
associated with lupus (severe, active lupus
nephritis)
* you are using another biologic medicine (eg,
etanercept, infliximab, immune globulin)
* you are receiving cyclophosphamide as an
injection into your vein (intravenous [IV])
Contact your doctor or health care provider right
away if any of these apply to you.
Before using Benlysta:
Some medical conditions may interact with
Benlysta. Tell your doctor or pharmacist if you
have any medical conditions, especially if any of
the following apply to you:
* if you are pregnant, planning to become
pregnant, or are breast-feeding
* if you are taking any prescription or
nonprescription medicine, herbal preparation, or
dietary supplement
* if you have allergies to medicines, foods, or
other substances
* if you have a history of a long-term infection, an
infection that keeps coming back, tuberculosis
(TB) infection or a positive TB skin test, or
hepatitis B infection
* if you have an infection, open cuts or sores on
your body, flu-like symptoms or other signs of
infection (eg, fever; chills; cough; warm, red, or
painful skin), or are using medicine to treat an
infection
* if you have a history of cancer or heart problems
* if you have a history of mental or mood
problems (eg, depression), or suicidal thoughts or
actions
* if you have recently received a vaccine or are
scheduled to receive a vaccine
Some MEDICINES MAY INTERACT with
Benlysta. Tell your health care provider if you are
taking any other medicines, especially any of the
following:
* Other biologic medicines (eg, etanercept,
infliximab, immune globulin), IV cyclophosphamide,
or monoclonal antibodies (eg, certolizumab,
denosumab) because the risk of their side effects
may be increased by Benlysta
This may not be a complete list of all interactions
that may occur. Ask your health care provider if
Benlysta may interact with other medicines that
you take. Check with your health care provider
before you start, stop, or change the dose of any
medicine.
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